I haven't posted in awhile. I don't even know where to start. There's been so much going on the last few months, it's just heart wrenching. Our friends Craig & Kristi lost their baby boy Kaden Alex Kuehl on April 20th, 2009 after a 17 day battle with a congenital diaphragmatic hernia CDH. CDH is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs. CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH. I had never heard of this condition until Kristi informed us and I think that faster we get the word out about these issues that can take our babies away from us the faster they will find a cure. Craig & Kristi are the strongest people I have ever known and I admire their strength during this difficult time. It's really times like these that make you appreciate what you have and puts everything in perspective.
I know that Kaden is playing with Aly & Izy's baby brother C up in heaven and together they will keep an eye on our girls...
http://kadenalexkuehl.blogspot.com/
Monday, April 27, 2009
Sorry I haven't posted in awhile
Sunday, April 12, 2009
Thursday, March 26, 2009
Our little girls are growing up...
Aly is so cute and curious about the bow on her dress...
They just love to play together
What mom??...Tuesday, March 17, 2009
Tuesday, March 10, 2009
Aly's clubfoot update
Aly had a minor set back with her club foot because she has learned to kick off her brace every night, so needless to say she hasn't been wearing it properly. At our last doctors appointment she was put back in a full leg cast. She gets a new cast every weds. until her foot is corrected back to position then we will try the brace again. So here are Aly & Izy taking a bath together with my make shift cast cover... LOL!! She's gonna love this one when she gets older
Aly and Izy go to the park
Aly and Izy had a great time at the park with daddy. They love their cute lil' pink glasses.
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