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Monday, April 27, 2009

Sorry I haven't posted in awhile

I haven't posted in awhile. I don't even know where to start. There's been so much going on the last few months, it's just heart wrenching. Our friends Craig & Kristi lost their baby boy Kaden Alex Kuehl on April 20th, 2009 after a 17 day battle with a congenital diaphragmatic hernia CDH. CDH is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs. CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH. I had never heard of this condition until Kristi informed us and I think that faster we get the word out about these issues that can take our babies away from us the faster they will find a cure. Craig & Kristi are the strongest people I have ever known and I admire their strength during this difficult time. It's really times like these that make you appreciate what you have and puts everything in perspective.



I know that Kaden is playing with Aly & Izy's baby brother C up in heaven and together they will keep an eye on our girls...

http://kadenalexkuehl.blogspot.com/

Sunday, April 12, 2009

Happy 1st Easter for Aly & Izy!